Well there in the distance, it appears to be yet another flicker of light that is physio. Yeah it's a pain in the a$$ to get out to Toronto, risk getting a ticket on the side of the road and actually get my mom to her physio appointments. But at the same time, when she's there I know she's stable and doing well. It's almost two weeks since we have been to physio. After my battle with a cold ended hers began. one and a half weeks later she's on Meropenum administered by an IV pump at home and she's miserable. The dangers here do not come from just merely having a cold. We all get colds, and we cough and we wheeze etc. The problem is when your a person who has 25% lung function remaining and you literally don't have the strength to blast the snotty little bastards out of your lungs. I say only by pure witness that unlike you and I who will continually cough until the shit comes out of you and into a kleenex, a person with end stage Alpha1 has about three coughs (not even decent ones) before they become seriously endangered. I witness her over and over begin to panic because there is a glob of phlem stuck in her airways. So for the past week I have been by her side, always within earshot to listen for when she coughs. We make sure that her BIPAP device is always next to her so I could quickly put it over her face if she gets to a point where she can no longer breath on her own.
So, with her on antibiotics as of Friday, I am hoping that she is well enough to at least partially participate at physio on Tuesday. I have always accepted the fact that things will get worse before they get better. But just like everything else, when you actually get there and put that pair of shoes on you never quite walk the way you thought you would.
Still waiting, I hope vivian is doing well with his new lungs. I hope to see him in physio soon or at least get the chance to visit him...
Keeping my head up but my spending down...
Cheers!
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